Charise Pfeffer of Glenmont has Huntington’s disease. The neurological disorder typically lies dormant until a person is in their 30s or 40s, and the slowly robs them of everything.
“It effects everything,” she says. “The way your body functions, the way you move, the way you eat, the way you walk.”
Her father Alan watched his wife and Charise’s mother die from the disease.
“What we expected for a normal life, career, grandchildren, a husband for her, those things people take for granted are going to be denied to us because of this devastating illness that right now will only end in death.”
As grim as the prognosis sounds, Alan and Charise have found hope in the Huntington Disease Society of America. Jessie Barr is an affiliate member. Her mother suffers from HD and Jessie and her family have rallied around mom, organizing fundraisers since 2009 to promote research for a cure.
On March 30, 2013, Troy high school will welcome the HD Society and the Harlem Ambassadors for a high flying basketball ‘performance’. Before this year, Jessie had helped to organize a free throw contest fundraiser, but decided to step it up this year.
For more information on the event, visit